Asthenia upon waking/persistent sleep intoxication

Good evening,

My sleep isn’t restorative, and that’s as far as I can remember (childhood).

I get up constantly “muddy”, “in the pie”, “exploded”.

This condition lasts on average within 8 hours after I wake up, and often subsides by nightfall.

Sometimes this is still there when I go to bed at night.

On a finer note, it’s the kind of unpleasant “gray” cotton/cloud feeling that dominates my entire head, a gritty feeling behind my eyes, which are puffy and puffy within hours of waking up. It’s related to photophobia +++, phonophobia and often a headache in headphones, and (rarely) when I wake up really bad, balance disturbances (similar to drunkenness). Randomly depending on the day, the severity of the stiffness of this condition varies. Sometimes it is just annoying. Sometimes it’s hell on earth.

I consulted late in sleep medicine because my GP relied throughout my adolescence on growth-related fatigue and adolescence. Furthermore, it wasn’t until I realized that my view of “fatigue” differed from that of others.

I slept a lot as a teenager (around 10-11 am), without changing anything when I woke up. I have experienced a lot of bedtime/bedtime changes. Nothing is at play in this state (although “more painful” fatigue is added to it when I sleep a little, or even more than immobility in the normal state if I sleep a lot). Sports (intensive) helps a little. I immerse myself in cold water (sea/lake), also quite a bit. Screens (telephone, TV, computer) and reading aggravate this condition. I shorten them as much as possible.

In search of ways to relieve the suffering, I realized that this condition disappeared when I took a short nap (20 minutes). I’ve reorganized my life to be able to take a nap during the day (mostly around noon, and another around 6pm). It’s a successful solution but has limitations (social misunderstanding and related consequences, difficult at work, hard to skip naps now that I’m used to it, little flexibility if I have to change the pace of my life (change schedules etc)).

I usually go to bed late (which makes sense, when you feel rested only in the evening), and therefore have relatively short nights (6am-7am), which my naps allow me to do (it’s a polyphasic type of sleep). On weekends and holidays, it’s time to lawn and go back to sleep from 9 a.m. to 10 a.m. It does make me feel refreshed though.

I consulted in sleep medicine in two different centers (Paris and Montpellier).

Nothing abnormal in polysomno.

Some have talked about narcolepsy because I’m taking a nap.

Others are transitional because I go to bed late.

I have a feeling neither of them really listened to what I was saying.

I am gradually moving away from them because I feel they are powerless to give me more help.

I’ve had (prescription) melatonin for a few years which I take occasionally.

The effect on sleep (when I am away from home) is modest, and that does not change the problem I present.

I identify myself in describing the “sleep sugar” that has been observed in some people with idiopathic hypersomnia.

I have no ATCD, no sleep disorder within my family, and no other health problem.

I am 29 years old, healthy, athletic, no weight gain

I am writing this letter to see if other people identify themselves with these symptoms, and if so, what have you been shown? Did you find things that work?

For others, do you have any advice for me?

Thanks for reading!

#Asthenia #wakingpersistent #sleep #intoxication

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