Since her birth, Olesya Kulikova has been in and out of the hospital due to myriad health problems.
From pneumonia, bronchial asthma and severe stomach pain, the 27-year-old girl was ill.
However, doctors were only able to diagnose him in 2009, when they discovered that his organs were in the wrong place.
Olesya suffers from a rare condition known as situs inversus totalis, an anomaly characterized by mirror inversion of vital organs.
The disease occurs in about 1 in 10,000 people born with the disease – Olesya has not been diagnosed for 13 years.
It is usually detected by X-ray, CT scan, MRI, or ultrasound.
She said she was 14 when she discovered her heart was on the right side of her body.
Then four years later, at age 18, he was told that his liver was on the left.
Olesya, from the Russian city of Achinsk, said she was hospitalized in 2019 with pneumonia when doctors told her her lungs were “mirror-like”.
“Every time I go for a check-up, I have to make it clear that my heart is on the right, not on the left like everyone else’s.
“I don’t have tattoos, documents or jewelry that could alert doctors if I lost consciousness.
“During an electrocardiogram, which is a test that checks the heart’s rhythm, [I have to tell] She told NeedToKnow.online.
In 2021, Olesya was diagnosed with Kartagener syndrome, a genetic condition that causes difficulty moving debris and fluid from the lungs.
Because of this, she said, she has had pneumonia four times, has bronchial asthma, shortness of breath and a persistent cough.
Fast forward to April of this year, and Olesya went to the hospital with stomach pains – only later was she told that she was already suffering from kidney stones.
In an effort to control and treat her condition, Olesya has started going to the gym where she hopes to help her lungs “work properly” and so far she has found breathing easier.
She claims that her condition is an anomaly and for this reason, pregnant women are asked to have an abortion.
Olesya, the only person in her family with the disease, added that she had already met a woman with the same disease, and told her that if the child survived, he might be born with a disability.
“Because doctors rarely encounter this kind of scenario, they assumed the baby was going to die — but she had a healthy baby, which I call the Miracle.
“In another case, the baby was born with a heart on the right and it had a defect, but he underwent surgery and his heart is now completely healthy.”
Although she has not yet had children, she is now trying to raise awareness of the disease so that people do not feel lonely.
She added, “I admit I was embarrassed to have a Totalis coup site – but I started blogging and people from different countries wrote to me.
“Most people often ask me about my health and find me a lot through hashtags where I offer support.
“Of course everyone hopes that their children can live happily ever after with this anomaly and I am confident that we can live a normal life.”
This story originally appeared the sun It is reproduced here with permission.
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